What is the Treatment for XY DSD and Its Cost?

Understanding the Medical and Financial Aspects of 46,XY DSD Care

Living with 46,XY DSD can be emotionally and financially challenging. The treatment journey may involve hormone therapy, which starts at just Rs. 2,500 per month, along with surgical procedures that can exceed Rs. 50,000. These medical options are tailored to the individual's needs, helping manage symptoms and improve quality of life through timely and specialised care.

What is the Treatment for XY DSD?

Based on the severity of symptoms, an individual with 46,XY DSD might need:

1. Hormone Replacement Therapy : These therapies help to induce puberty and decrease the potential of developing DSD-related health conditions such as osteoporosis.
2. Reconstructive or Sex Assignment Surgery  : Healthcare professionals recommend these surgeries when it is necessary to change the appearance of the genitals. Unless medically urgent, these procedures are typically delayed until the child is mature enough to make a well-informed decision.

What is the Cost of Treatment for XY DSD?

1. Hormone Replacement Therapy

During this therapy, hormones like estrogen and progesterone are primarily injected, which can cost around Rs 2,500 per month. If individuals like to visit a certified therapist, they will be charged around Rs. 8,300 per session.

2. Reconstructive or Sex Assignment Surgery

Pediatric urologist surgeons generally suggest the following corrective surgeries for children born with 46,XY DSD conditions. They include:

• Hypospadias Correction Surgery : Hypospadias surgery typically costs between Rs. 35,000 and Rs. 1,00,000 in tier-1 cities across India. For instance, in Hyderabad, patients may experience a price range of Rs. 50,000 to Rs. 1,00,000. On the other hand, in Gurgaon, the cost can range from Rs. 24,490 to Rs. 83,000.
• Male Genitoplasty : Male genitoplasty (female-to-male gender reassignment surgery) typically costs between Rs. 4.6 lakh and Rs. 20 lakh, depending on the procedures involved and the hospital.
• Orchiopexy for Undescended Testis : The average cost of orchiopexy surgery can range between Rs. 30,000 and Rs. 1,00,000. However, this price estimate can differ based on several factors such as the hospital's location, type, and facilities you chose, the surgeon's experience, and other additional treatments required post-surgery.

Disclaimer: Cost-related information sourced from different websites. It is advisable to consult the best surgeons or clinics for accuracy.

Interestingly, 46,XY DSD has been recently included in the list of rare diseases covered under the National Policy for Rare Diseases. So, eligible patients can now receive financial assistance of up to Rs. 50 lakhs, making advanced treatment options more accessible and affordable than ever before.