What is Therapy for Loeys-Dietz Syndrome and its Cost?

Loeys - Dietz Syndrome Therapy in India – Costs and Treatment Options

Did you know that the most common treatment for Loeys-Dietz syndrome has excellent success rates, typically ranging between 97-100%? Recent advancements in surgical techniques have remarkably improved the outcomes. Keep on reading to explore the city-wise treatment cost in addition to the cost breakup of this disorder.

What is Loeys-Dietz Syndrome?

Loeys-Dietz syndrome (LDS) is a rare genetic disorder primarily caused by a gene mutation that affects connective tissues in the body. To specifically suggest the body part, LDS mainly affects biomes, joints, eyes, skin, heart and blood vessels, often leading to severe complications throughout the body.

There are 5 known types of LDS, classified as LDS-I through LDS-V, based on different gene changes.

What is Therapy for Loeys-Dietz Syndrome?

Management of Loeys, Dietz syndrome is multidisciplinary and includes medical therapy, ongoing vascular imaging, genetic evaluation, and surgical interventions when indicated.

● Medications

Health care providers prescribe beta-blockers or angiotensin receptor blockers (ARBs) to the patient suffering from LDS if it is at a moderate stage. These blockers help control blood pressure and ease pressure on the aorta.

● Aortic Root Replacement

If medications fail to treat the disorder, then medical professionals recommend certain cardiovascular surgeries to prevent further complications. The most suggested surgery option is aortic root replacement.

● Other Heart Surgeries

Orthopaedic surgery may be recommended for skeletal issues such as scoliosis or foot deformities, while cardiovascular surgeries are reserved for aortic aneurysms, dissections, or valve, related complications.

What is the Cost of Therapy for Loeys-Dietz Syndrome?

The average treatment cost for aortic root replacement surgery is somewhere between Rs. 6,00,000 to 12,00,000 in India. However, it varies significantly based on multiple factors:

• The type of valve will be used for the replacement of the aortic root
• The surgeon's expertise
• Type of hospital
• Location and facilities of the hospital
• Duration of hospitalisation
• The type of graft your doctor will use
• Potential post-surgical complications

1. Pre-Treatment Costs

To have a clear overview of where your money can go, here is the cost breakdown of the pre-treatment cost of aortic root replacement.

If advanced procedures are used, such as valve-sparing aortic root replacement, or you choose some minimally invasive treatment option, the treatment cost can be expensive. It can go up to  Rs. 15,00,000, depending on the technology and technique used.

2. Post-Treatment Costs

In most cases, 1–2 days of ICU charges are included in the surgery package, which can be around Rs. 10,000 – 20,000 per day. Other post-treatment costs to ensure speedy recovery and long-term health management are:

3. City-wise Cost of Aortic Root Replacement

Here is a table to give a city-wise breakdown of the estimated minimum and maximum costs of this complex cardiac procedure.

Disclaimer: The cost-related information is sourced from various references and may vary. It is recommended to consult well-known cardiologists or cardiothoracic surgeons for accurate and up-to-date details on treatment costs.

Understanding city-wise costs of aortic root placement helps patients affected by Loeys-Dietz syndrome plan more effectively for managing this genetic condition. Consulting a cardiologist is strongly recommended when symptoms such as cardiovascular issues, skeletal abnormalities, skin changes, or gastrointestinal problems are observed.