What is the Best Treatment for Inclusion Body Myositis?

Inclusion Body Myositis – What Helps When There’s No Cure

Inclusion body myositis (IBM) is a condition that causes muscle weakness, which can progressively worsen over time and lead to muscle damage. It is most commonly seen in older adults, particularly men over the age of 50.

Currently, there is no effective treatment for inclusion body myositis. Unlike other inflammatory and autoimmune disorders, this condition does not respond to corticosteroids or immunosuppressant medications. However, physical therapy and regular exercise are essential for maintaining muscle strength as much as possible.

Keep reading to learn more about inclusion body myositis (IBM), its types, causes, symptoms, and treatment.

What are the causes of inclusion body myositis?

There are two types of inclusion body myositis. Despite having similar symptoms and diagnoses, they have distinct causes, which are as follows:

1. 1. Sporadic Inclusion Body Myositis (s-IBM): The exact cause of s-IBM is unknown, but it is believed to have an autoimmune component, meaning the body may mistakenly attack its own tissues. Despite this, other contributing factors may exist.
2. Hereditary Inclusion Body Myopathy (h-IBM): h-IBM has a genetic basis and is classified as "myopathy" instead of "myositis", as it does not involve inflammation of the muscles. Furthermore, h-IBM usually spares the thigh muscles.

What are the inclusion body myositis symptoms?

Inclusion body myositis is related to muscle weakness that develops gradually and typically starts in the limbs. When a person attempts to write with pens or button their clothes, some observe a lack of dexterity.

As symptoms increase, a person may notice:

• Increasing muscle weakness in the arms, legs, shoulders, hips, hands and feet.
• Muscle weakness in the neck or oesophagus,
• Causing difficulties lifting the head or swallowing.
• Visible muscle atrophy, thinning of the muscles
• Mild or frequent muscle pain.
• Trip or fall

How is Inclusion Body Myositis Diagnosed?

A medical professional will begin by reviewing the symptoms and examining the muscles to diagnose inclusion body myositis in a person. The healthcare provider will look for specific indicators, including:

• Which muscles are affected
• Whether one side of the body is more affected than the other
• The presence of visible muscle loss (atrophy)
• Age when the symptoms first appeared

They may also conduct several lab tests to rule out other conditions, such as the creatine kinase (CK) test, blood tests, and the electromyogram test (EMG).

What Are Some Lifestyle Strategies a Person Follows in Inclusion Body Myositis?

Some lifestyle changes a person should follow in inclusion body myositis are as follows:

• Exercise: Aregular programme of stretching exercises prescribed by the doctor can help maintain the range of motion in weakened arms and legs.

Physical therapy may also prevent permanent muscle shortening. Additionally, a person might consider incorporating whirlpool baths, heat therapy, and gentle massage into their routine.

• Rest: Getting sufficient rest is important for managing myositis. Throughout the day, try to limit the activities and take frequent breaks to avoid overexertion.
• Nutrition: The diet can significantly impact overall health. So it is important to consult a trained nutritionist to help an individual create a diet tailored to their needs and lifestyle.
• Stress Reduction: Managing daily stress is essential for myositis patients. The doctor may recommend relaxation techniques such as exercise, yoga, or biofeedback exercises to help cope with stress effectively.Any exercise program must be specifically tailored by a physical therapist familiar with IBM to avoid falls and injury.

Can Myositis Be Cured Permanently?

No, myositis is not a condition that can be permanently cured. Although there is no cure, effective treatment can often lead to some recovery, which enables individuals to lead active lives with significant symptom relief. Healthcare management primarily focuses on reducing inflammation, improving muscle strength and function, and preventing further muscle damage.

Inclusion Body Myositis is a difficult condition indicated by progressive muscle weakness, which primarily affects older adults. While there is currently no cure, effective management strategies, including physical therapy, regular exercise, and lifestyle modifications, can help individuals maintain muscle strength. With ongoing research and supportive health care, a person can find ways to cope with the disease and enhance their daily tasks.

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